When her daughter is born with unusual features, the author is thrown into a world she never heard of: the world of craniosynostosis. Here, she shares her knowledge with readers and offers a primer on this unusual ailment.
Melanie Roder is a mother, artist, and writer. She decided to become an advocate for awareness and education for abnormalities of the skull and face in 2001, when her own daughter was diagnosed with Craniosynostosis. Melanie’s family’s struggle for a diagnosis fueled the passion to always reach out and educate so other families would not go through the same grief and struggle.